Where Am I? -> USEFUL LINKS
Direct link to this page: http://www.eurocat-network.eu/usefullinks


Useful Links


Useful Resource

 

Congenital Malformations Browser http://en.atlaseclamc.org/ from the Latin-American collaborative study of congenital malformations (ECLAMC)

The Public Health Genomics Toolkit for Health Needs Assessment in Congenital Disorders http://toolkit.bornhealthy.org/index.htm


EUROCAT Local Registry Websites

Northern Netherlands

 

 

European Birth Cohort

European Collaboration on Craniofacial Anomalies (EUROCRAN)

European Commission

European Commission - Executive Agency for Health & Consumers (EAHC)

European Committions - Rare Diseases Section

European Committee of Experts on Rare Diseases (EUCERD)

European Cytogeneticists Association Register of Unbalanced Chromosome Aberrations (ECARUCA)

European Directory of DNA Diagnostic Laboratories (EDDNAL)


European Network of Rare and Congenital Anaemias (ENERCA)

European Organisation for Rare Diseases (EURORDIS)

European Project for Rare Diseases National Plans Development (EUROPLAN)

European Teratology Society (ETS)

International Birth Defects Information Systems (IBIS)


International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)

Office for National Statistics (ONS)

Orphanet

Orphanet Journal of Rare Diseases

Rare Diseases Task Force (RDTF)



EUROCAT Member Registry Institute Websites

 
JRC-EUROCAT Central Registry

 


Hainaut, Belgium - Scientific Institute of Public Health

 

 

Other Congenital Anomaly Registries

British Isles Network of Congenital Anomaly Registers (BINOCAR)

 

Patient Oriented Websites

 

Born Healthy

 

Contact a Family

International Federation for Spina Bifida & Hydrocephalus

March of Dimes

Newlife Foundation for Disabled Children


Shine


 
Public Health Authorities

Centers for Disease Control and Prevention


World Health Organisation (WHO)

WHO

 

WHO Genomic Resource Centre

WHO/CDC/ICBDSR. Birth defects surveillance: a manual for programme managers. Geneva: World Health Organization; 2014. Accessed via http://www.cdc.gov/ncbddd/birthdefectscount/documents/bd-surveillance-manual.pdf

 

WHO/CDC/ICBDSR. Birth defects surveillance: atlas of selected congenital anomalies. Geneva: World Health Organization; 2014. Accessed via http://apps.who.int/iris/bitstream/10665/127941/1/9789241564762_eng.pdf

 

 

WHO Collaborating Centres (relevant to Congenital Anomalies)

WHO Collaborating Centre for Drug Statistics Methodology - Norwegian Institute of Public Health

Provides access to a searchable version of the complete ATC index with DDDs