EUROCAT Member Registries
EUROCAT Membership Criteria [pdf]
Full Member Registries transmit case data on all congenital anomaly cases in their region [Full Member Registry Description and Contact Details].
Associate MemberRegistries transmit an aggregate file containing the total number of cases in each congenital anomaly subgroup by type of birth [Associate Member Registry Description and Contact Details].
Affiliate Member Registries do not transmit data to EUROCAT but participate in meetings and projects. New Members are Affiliate Members until their first set of data has been published on the EUROCAT website at which time their membership status transfers to Full or Associate [Affiliate Member Registry Description and Contact Details].
Applicant Registries are those who are in the process of applying for membership [Applicant Member Description and Contact Details]
Past Members Registries are those who have closed their activities or have made such fundamental organisational changes that a new membership application is required [Past Member Registry Description and Contact Details].
To download a Complete Membership List with contact details please click here [Complete Membership List]
"World Affiliate" Registries are non-European registries that benefit from close liaison with the EUROCAT Network (eg. guidance on setting up a registry and on coding and classification). World Affiliates do not transmit data to EUROCAT, but do participate in meetings and may be asked to participate in specific projects. [World Affiliate Member Registry Description and Contact Details]
Coverage of European Population
Map of EUROCAT Full and Associate Member Registries [pdf]
Percentage Coverage of the Eruopean Birth Population (year 2012) by EUROCAT Full and Associate Member Registries [table]
Percentage Coverage of the European Birth Population (year 2011) by EUROCAT Full and Associate Member Registries [table]
Percentage Coverage of the European Birth Population (year 2010) by EUROCAT Full and Associate Member Registries [table], [map]
Nature of the Population Covered, the Geographical Range and Definition of Stillbirth for Each Full and Associate Member Registry [table]
Number of Births 1980-2012 [table]
EUROCAT Registries: Upper Age LImit for Recording Congenital Anomalies (May 2012) [table]
How to Become a EUROCAT Member Registry
First view the EUROCAT Membership Criteria [pdf] and then fill out the EUROCAT Membership Application Form [Word].
New Applicant Registry Process Flowchart [pdf]
Overview of EUROCAT Registry Advisory Service
- To promote setting up of new registries in order to assure collecting of comparable, standardized data
- To promote the exchange of knowledge and practical skills on population-based registration methods, classification and coding of congenital anomalies
- Network expansion and data quality improvement
- Work with applicant members to achieve full membership including successful data transmission (this includes a one-year follow-up and evaluation of data collection for new applicants)
- Availability of a RAS contact by e-mail for any registration problems (e.g. coding etc.)
- Organisation of training workshops on EUROCAT methodology and coding at annual Registry Leader’s Meetings
- Evaluation and reporting (to EUROCAT Management Committee/Project Management Committee/Central Registry on the available infrastructure, methodology and data of applicant members
- Liaises with other potential EUROCAT members
- Involved in the evaluation of coding and data quality indicators
For RAS enquiries contact Prof. Ingeborg Barisic (Ingeborg.Barisic@kdb.hr) or Dr. Ester Garne (EGarne@dadlnet.dk)