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Guide 1.4

Complete EUROCAT Guide 1.4 and Reference Documents  (Version 20.12.16) [Guide 1.4]

 

 

Selected Sections

 

Chapter 1 - Aims and Objectives of EUROCAT [Chapter 1]

Chapter 2 - Data Transmission

 

     Section 2.1 General Instructions for Data Transmission [Section 2.1]

     Section 2.2.1a Summary of Variables [Section 2.2.1a]

     Section 2.2.1b Coding Instructions (Version 20.12.16) [Section 2.2.1b]

     Section 2.2.2 EDMP Derived Variables (Version 27.10.16) [Section 2.2.2]

     Section 2.2.3 Recommended Local Variables [Section 2.2.3]

     Section 2.2.4 Template for Associate Member Registry Data Transmission (Version 27.10.16) [Section 2.2.4]

     Section 2.3 Template for Denominator Data [Section 2.3]

     Section 2.4 EUROCAT Data Management Program (EDMP) Instruction [Section 2.4]

     Section 2.5 Data Validation Routines [Section 2.5]

Chapter 3 - Coding and Classification

 

     Section 3.1 Overview of EUROCAT Approach to Coding and Classification [Section 3.1]

     Section 3.2 Minor Anomalies for Exclusion (Version 14.10.14) [Section 3.2]

     Section 3.3 EUROCAT Subgroups of Congenital Anomalies (Version 2014; implemented in EDMP December 2014, used for website  

           prevalence tables from December 2014) (Version 23.9.16) [Section 3.3]

     Section 3.4 Multiple Congenital Anomaly Algorithm (Version 19.11.14) [Section 3.4

     Section 3.5 Details Congenital Anomaly Coding Guidelines (Version 20.12.16) [Section 3.5]

     Section 3.6 EUROCAT Description of the Congenital Anomaly Subgroups (Version 19.11.14) [Section 3.6]

Chapter 4 - Prevalence Rates

     Section 4.1 Calculation of Prevalence Rates [Section 4.1]

     Section 4.2 Interpretation of Prevalence Rates [Section 4.2]

Chapter 5 - Registry Description and Data Quality Indicators

 

     Section 5.1 Template for Registry Description (Version 27.10.16) [Section 5.1]

     Section 5.2 Registry Description Questionnaire [Section 5.2]

     Section 5.3 Definition of Data Quality Indicators [Section 5.3]

 

Chapter 6 - Data Protection and Access to Data (UNDER REVISION)

 

     Section 6.1 EUROCAT Central Database (UNDER REVISION) [Section 6.1]

     Section 6.2 Release of Data (UNDER REVISION) [Section 6.2]

     Section 6.3 Guidelines on Security and Confidentiality for Staff Working in EUROCAT Central Registry (UNDER REVISION) [Section 6.3]

     Section 6.4 Data Protection Principles (UNDER REVISION) [Section 6.4]