Introduction/Purchase for Non-European Members
EUROCAT Data Management Program (EDMP) is a specially designed program for European surveillance of congenital anomalies. The program is available for purchase by non-European congenital anomaly registries (excluding the statistical monitoring function). Non-European Congenital Anomaly registries purchasing the EDMP are required to become EUROCAT World Afilliates. The EDMP has many features which enable effective epidemiological surveillance including:
1. database management functions such as data validation and duplicate case checking
2. reporting prevalence rates of congenital anomalies
3. statistical monitoring (not available for purchase)
The database management functions are essential for the collection of accurate standardized data from all of the participating registries. Data validation routines enable data checks to be carried out locally, before transmission of the data to EUROCAT Central Registry.
The Report function creates output tables/reports presenting prevalence rates for EUROCAT’S congenital anomaly subgroups both including chromosomal anomalies and excluding chromosomal anomalies or for user-defined congenital anomaly subgroups. Depending on the type of table selected, users can obtain total prevalence (livebirth, fetal death, termination of pregnancy), birth prevalence (livebirth, fetal death) or livebirth prevalence for the specified congenital anomaly and time period.
Statistical monitoring in EDMP allows users to run cluster and trend tests over time. Scan methods are used to detect clusters, which can be based on estimated date of conception or on date of birth. Methodology is explained in the EUROCAT Statistical MonitoringProtocol [Protocol].
EDMP instructions for use can be found inEUROCAT Guide 1.3 [Guide]. The program is regularly updated according to the demands and requirements of local registries [link]. The date of the current version of the program is located at the bottom right-hand corner of the log-on screen. The current version in use is:
Version 5.13 (30/08/2012)
All users must conform to EUROCAT's guidelines and instructions for transmitting data (EUROCAT Guide 1.3):
Requirements: In order to run the EDMP program, users must have the full version of Microsoft Access and Microsoft Excel installed on computer. The program runs on Microsoft Access 2000 or above.
Enquiries: Contact the JRC-EUROCAT Central Registry (JRC-EUROCAT@ec.europa.eu) for further information.
EDMP Poster [Poster]